Army of Dolls

Dr . Jonas is a psychologist . She’s petite with short grey hair , wears thin glasses , and dresses like a nun . I heard about her through a friend who told me she’s not only good , but sees students at a discounted rate . I’m like a desperate whore these days when it comes to therapists . I’m willing to give anyone a go. She’s currently on the phone.

While I wait across the desk from her, I glance around her peculiar office . It’s actually a spare room in her house , and that makes me uncomfortable. The walls and floor are a pale pink . Numerous old – fashioned dolls in Victorian dresses and doll houses are scattered throughout the room . It reminds me of a five year – old girl’s playroom . I hate dolls . They’re creepy, plastic , miniature humans who probably come alive at night and kill people…The label doesn’t feel right to me, like an ill – fitting jacket . She’s the expert , so there’s no convincing her, but it can’t be right. I squirm in my chair. I want to tell her every single person on earth exhibits some traits of mental disorder, but I don’t want to start a fight . It’s not like she’d believe me . She’s the doctor and I’m the patient, even though seeing patients among an army of dolls hints of her own mental issues . I look up , straight into the eyes of a beautiful doll with long locks of golden curls. I want to smash its porcelain face .

Manic Kingdom: A True Story of Breakdown and Breakthrough by Dr. Erin Stair

HIV Children and Orphans are Defacto Test Subjects

Children with HIV are increasingly finding that their status is that of involuntary research subjects, not victims. In December 2004, for example, the journal Nature Medicine reported that since the early 1990s, HIV-positive orphans have been the subjects of “dozens of national clinical trials run by researchers at Columbia University Medical Center and other [New York City] area hospitals.” Mammoth pharmaceutical corporations such as GlaxoSmithKline, the manufacturer of zidovudine, have sponsored the testing of antiretroviral and other pharmaceuticals on scores of HIV-infected orphans housed in New York City’s Incarnation Children’s Center (ICC). This institution for the HIV-infected is run by Catholic Charities in Washington Heights…

Some of the candidate AIDS medications are being tested to determine their toxicity. Children as young as four were given cocktails of up to seven potent medications, although physicians are normally reluctant to give young children even approved powerful medications. Little if any benefit accrued to the infants from these risky exposures, because although some were HIV-positive, they were too young to have developed AIDS. One study is of “Stavudine…Alone or in Combination with Didanosine,” a combination that has killed adult women. An experimental vaccine administered to children as young as twelve months utilizes “live chicken pox virus,” even though it can trigger the disease itself. A study titled “HIV Levels in Cerebrospinal Fluid” required that infants undergo a spinal tap, a risky, invasive, and painful procedure. There was even a study on HIV-negative children that used an experimental HIV vaccine. By law, such a nontherapeutic study on healthy children can convey only minimal risk, but the vaccine’s risks are unknown.

Also, some of the experiments did not involve HIV therapeutics: One drug trial tested a herpes medication “for tolerance, safety and pharmacokinetic” information; another investigated reactions to a doubled dose of measles vaccine—in six-month-old infants.

For its part, Columbia University released a statement denying that the drugs’ side effects were serious enough to warrant discontinuing treatment. However, this should have been the parents’ call, not the university’s or the ICC’s. But guardians and parents who adopted HIV-infected children have found the ICC, ACS, and researchers arrayed against them when they have tried to take children off medications they found to be harmful.

In explaining her take on this struggle, Dr. Painter has said, “We’re having an increase in referrals over the last years to deal with medication adherence. There are a fair number of children whose HIV illness may be well controlled but whose families are experiencing difficulty complying with the child’s medication regimen.” By “referrals,” Painter means children who are torn from parents and returned to the various agencies when these parents and guardians balk at dispensing the investigational drugs.

Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present by Harriet A. Washington

Medical Exorcism

Without warning , the patient leans forward slightly in her bed . With her eyes still closed , she spews green and black bile out of her mouth, splattering her hospital gown and hair. She falls back against her bed . Her sister grabs tissues off a table in the room and begins wiping around the patient’s mouth. My mouth opens and won’t close . My heart is galloping. I feel like I just witnessed an exorcism.

“Should I call someone?” Like a priest. I have no idea what just happened, but it looked bad .

“No, no.” Dr . Brown calmly waves me off . “It’s a reflex . She has done that frequently now for the last month and a half .”

I can’t believe it . She’s been like this for a month and a half ?

“It’s horrible to see, I know,” the sister says , now tearful. She caresses the woman’s forehead with her hand. “But I just can’t pull the plug. Not now. I don’t think she’d want that. That’s not what she wanted, and I couldn’t live with myself if I did that.”

There are so many machines that can keep people alive indefinitely. The thought terrifies me . Everyone’s narcissistic , that’s the problem. That’s why death isn’t as naturally accepted as being born. I want to bolt out of the hospital and drink, but I know I can’t. I want to be a doctor, but I question whether I can stand all the physical ugliness of it .

-Manic Kingdom: A True Story of Breakdown and Breakthrough by Dr. Erin Stair

People Cheaper Than Cats

…the array of electrodes that Bailey and Heath devised and then implanted into the brains of black subjects for as long as three years each. The team used the electrodes to deliver charges to the limbic system of the brain. This group of related brain structures includes the amygdala, the hippocampus, and the septum, which are key to emotions and judgment. By stimulating these areas, Bailey evoked pleasure, pain, joy, anger, sexual arousal, and other powerful emotions in his black subjects at will. The electrodes were designed to facilitate stimulation of the brain’s “pleasure centers” either by a remote operator or by the subject himself, using a transistorized “self-stimulator” unit worn on the patient’s belt. Bailey did some of these experiments on black prisoners in New Orleans’s Louisiana State Penitentiary but made no mention of how he gained access to other hospitalized patients for such experiments or whether any sort of consent had been sought. Neither he nor Heath ever mentioned what they told the patients. But Bailey reminisced about his methods at Tulane when speaking to a group of nurses in Chelmsford, back in his native Australia, twenty years later,

“I was working in America in New Orleans, there was experimental work being done there on cats, where they found that if you put electrodes down on the anterior part of the brain, in the septal region between the two hemispheres and down, right deep down, sort of here, put electrodes in here, that you struck a [inaudible] which had something to do with screwing and orgasm and pleasure and satisfaction. And if they put a wire in this and took it out and put it on to a push button, the cat would very quickly know that if it pressed the button, it got a little “chop,” and this was a sort of a little orgasm. And so the cat would go “pop” again, and get the taste of it, and the cat would go “pop, pop, pop, pop.” Here was something important. What did you make of it? So, in New Orleans, where it was cheaper to use niggers than cats, because they were everywhere and cheap experimental animals—there wasn’t much working there, the people we have been picking for the operation has [sic] really been at the bottom of the can. Nothing is going to help them—shoot them is the only thing—so they started to use them, Negroes—patients in hospitals—and so, the same area, little box, was put on their paws with a button. They just went around, “pop, pop, pop,” all the time, continuous orgasms…”

After his return to Australia, Bailey opened a “deep sleep therapy” clinic for depression and a wide variety of other psychiatric complaints at Chelmsford Hospital in Sydney, which he operated between 1963 and 1979. The deep sleep therapy technique is a misnomer for patient abuse that Bailey practiced by placing thousands of patients with a wide variety of psychiatric symptoms into a barbiturate-induced coma for two weeks, during which time he administered repeated electroshock therapy and implanted electrodes and even metal plates into many of their brains, without their knowledge or consent. Many patients deteriorated dramatically, but they learned only years later from news accounts what their doctor had done to them. He sexually abused some of the women patients. Scores of patients died, although Bailey concealed the true number by arranging for many worsening patients to be shipped off to other hospitals, where they died without ever regaining consciousness.

Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present by Harriet A. Washington

Nazi vs American Medical Experimentation

Quote 1:

n 1947, the International Military Tribunal in Nuremberg charged Nazi doctors with war crimes, including experimentation upon prisoners of war. The Germans’ ably conducted defense hinged upon Dr. Gerhard Rose’s contention that U.S. doctors were guilty of exactly the same abuses—regularly subjecting prisoners to dangerous, painful involuntary experiments. The trials culminated not only in the conviction and execution of many accused physicians but also in the Nuremberg Code, which was devised to govern future medical experimentation.

In The Nazi Doctors and the Nuremberg Code,24 George Annas and Michael Grodin analyze how U.S. investigators rejected Nuremberg and replaced it with naught but hollow assurances that American medical researchers needed no such constraints.

Quote 2:

Poverty, not criminal behavior, is the most common feature of the imprisoned. Jails are full of people, both guilty and innocent, who are there only because they are too poor to make bail. By the 1970s, most prisoners in Holmesburg, for example, were legally innocent men awaiting trial. Between the 1940s and 1970s, bail bondsmen typically would spring an inmate for a down payment of 10 percent of his bail, so that a man jailed in lieu of a five-hundred-dollar bond could buy his freedom within weeks with the fifty dollars he earned from a single medical experiment.

Quote 3:

Most people don’t realize that prison medical research, which all but died out in the 1970s, is enjoying a quiet renaissance. Since the late 1980s, investigators in Arkansas, Maryland, South Carolina, Texas, Florida, Connecticut, and Rhode Island have been conducting and proposing research in prisons.

Most of these researchers are funded by the Department of Health and Human Services (HHS), which, for example, supports the Yale School of Medicine with $178.7 million and the University of Miami Medical Center with $191 million….Dr. Joseph Zwishenberger’s radical new approach to lung cancer, which is to heat the subjects’ blood to a temperature where the errant cancer cells theoretically would not thrive. To test his theory, he sedates inmates and connects them to a machine called the BioLogic HT System, which removes blood via venous and cervical tubes. The blood is heated, then returned to the inmate’s body, which is kept at a very dangerous elevated temperature of 108.5 degrees. Any adult taken to a hospital with a temperature of 105 degrees would be considered an emergency case and cooling strategies would immediately be undertaken, but in Zwishenberger’s protocol, inmates’ 108.5 temperatures are sustained for two hours.

Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present by Harriet A. Washington

Medical Data Exploitation

Administration, Census Bureau, and Department of Veterans’ Affairs all maintain extensive collections of genetic data. Since May 1998, sex offenders have been required to surrender DNA samples to federal databases, and today every state maintains its own DNA database that contains the DNA profiles of felons—and of others, including people merely suspected of crimes or even of innocent people rounded up in DNA sweeps. The samples of 450,000 convicts are stored with identifiers, such as the person’s name, description, criminal record, Social Security number, and image. The government has also sponsored the creation of national databases, such as the FBI’s Combined DNA Index System (CODIS), which stores DNA samples, most without identifying information. CODIS went online in 1998 with samples from 8,000 convicted child molesters, and by 2001, it contained the profiles of 1.5 million felons. In 2002, the U.S. Attorney General ordered the FBI to expand CODIS to 50 million profiles, and by 2004, CODIS stored 2.6 million samples containing the DNA of people convicted of almost any crime. In October 2005, the Senate Judiciary Committee approved a law, which was pending when this book went to print, to force anyone who is merely detained by federal authorities to provide DNA, and in August 2006 the database contained more than 3.5 million samples. The FBI predicts that CODIS will accommodate 50 million samples “in the near future.”

Besides harboring the markers for four thousand disease risks, DNA also contains information about the health and identity of one’s forebears and descendants. With a sample of your DNA, a person can predict certain disease and disorder probabilities for you and for your children. George Annas, a law professor and bioethicist at Boston University, has referred to one’s DNA profile as a “future coded diary,” and with the completion of the Human Genome Project, the code has essentially been broken. Therefore, taking the fingerprints of an arrestee and taking a sample of his DNA are not comparable acts; the latter is far more intrusive and revealing—but far less likely to yield a uniquely definitive identification.

Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present by Harriet A. Washington

Children as Test Subjects

The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research concluded in 1977 that children were an especially vulnerable population because they could not offer consent. Yet, children today are more likely to become research subjects now that federal policies begun in the mid-1990s have changed the face of the “typical research subject.” The National Institutes of Health (NIH) Research Revitalization Act mandated the inclusion of women and minorities in all research in 1994 and added children in 1998. So far, the new FDA and NIH policies have placed stress not on protecting children but on ensuring children’s access to research—unfortunately, this too often means researchers’ access to children. This is an ominous paradigm shift for black children, who already are overrepresented in nontherapeutic and stigmatizing medical research.

Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present by Harriet A. Washington

Brain Surgery for Docility

From the 1960s through the early 1970s, disenchantment with the widespread use of tranquilizers fostered interest in brain surgery as an alternative to “quiet” patients. University of Mississippi neurosurgeon Orlando J. Andy, M.D., capitalized on this trend, performing many types of brain ablations, including thalamotomies (destruction of the thalamus, which controls emotions and analyzes sensations), on African American children as young as six who, he decided, were “aggressive” and “hyperactive”…Today, Andy is revered as a neurosurgical pioneer, one whose work was never challenged in his lifetime and who never suffered any disciplinary action…brain destruction was employed not only for misbehaving black boys but to ensure the docility of prisoners and, in the 1960s, as a government-funded cure for urban rioters. Three American physicians proposed that such urban uprisings were caused by men who could be cured by psychosurgery. Dr. Vernon Mark, director of neurosurgery at Boston City Hospital, and his colleagues Drs. Frank Ervin and William Sweet swept aside social factors such as poverty, slum housing, and poor education in a 1967 proposal in the Journal of the American Medical Association: The obviousness of these causes may have blinded us to the more subtle role of other possible factors, including brain dysfunction…The National Institutes of Mental Health (NIMH) and the Law Enforcement Assistance Administration granted the three surgeons $600,000 for brain research on urban rioters.

Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present by Harriet A. Washington

Radioactive Experiments on Orphans

Vanderbilt University physicians administered radioactive cocktails to pregnant women in Nashville. The University of Chicago fed the radioactive elements strontium and cesium to 102 unwitting patients at state schools. One Dickensian institution, the Fernald School in Waltham, Massachusetts, added radioactive oatmeal to the menus of thirty orphans in a program sponsored by the AEC with the support of the Quaker Oats Company. Old videotapes reveal that some of these Fernald boys were African American, but no records with racial identifiers were ever released. When victims died, government scientists obtained their bodies and autopsied them carefully, measuring the levels of radioactivity and biological damage. To enable large numbers of these grim assessments, at least fifteen thousand bodies were exposed and collected for one project alone: Operation Sunshine. Until the mid-1980s and without the knowledge of patients or their next of kin, this program shipped the bodies and body parts of radiation experiment victims to be dissected at headquarters in Los Alamos, New Mexico.

Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present by Harriet A. Washington

Homelessness and Health Care

Quote

Amazon.com

Although the tipping point is often the loss of a job, sickness or injury often precede it. Sickness and injuries make holding a job difficult, which leads to income declining and homelessness for those without a safety net. Due to the mostly employer-based health insurance coverage system in the U.S., no job means no health insurance. The combination of unemployment and poor health can then lead to financial ruin. Nerdwallet estimated that 57.1 percent of U.S. personal bankruptcies are due to medical bills, making it the leading cause of the financial calamity that often precedes homelessness.

We can learn from how one doctor addressed hunger, another so-called health-related social issue or “social determinant of health.” Decades ago, Jack Geiger founded the first federally funded community-health center in the U.S. There, he began giving impoverished patients prescriptions for food using its pharmacy funds. Nervous about this practice, federal officials tried to stop him, but Geiger responded, “The last time we looked in the book, the specific therapy for malnutrition was food.”

The specific therapy for homelessness and its associated health issues is housing.

How Health and Homelessness are Connected—Medically: This doctor examines the web of medical conditions that lead to and compound homelessness, and vice versa, The Atlantic, 01/25/2016, written by Seiji Hayashi